Drained

    Saturday's are usually a pretty slow day at the hospital, so today I went to work while my aunt came and kept Chris company.   It was supposed to be a smooth transition of her coming and me leaving, but was complicated by the fact that my car battery decided to call it quits.  My aunt let me borrow her vehicle, and a good friend Logan is working right now to replace the battery.

      While I was gone they decided to do another, session of dialysis.  This time was in his room.  Dialysis is typically only 3 days a week, but they are still concerned about his kidneys so this was the 5th one since they put the tunnel line in on Monday.

      In the early afternoon, Dr Sobrov came in and talked with Chris.  He was supposed to be off this weekend but wanted to talk to him about the blood test results.   They came back but weren't able to confirm the diagnosis 100%.  They are 90% certain, but will need the bone marrow biopsy to be certain.   The bone marrow biopsy is scheduled for Tuesday, but it wouldn't be until later in the week when they get the results.  However, because his kidney's are still struggling and the longer they wait the more damage is being caused, they still would like to proceed and start more treatment tomorrow.  It is a shot that they would give once a week and would help destroy the mutated protein.   Obviously the 10% chance that they are wrong brings greater risks than if they were certain, so weighing the risks vs the benefits of both sides is something we will discuss and decide upon by tomorrow.

     He also was transferred to the Huntsman Cancer Institute.   He is in room 5540.   It is in the HMU section (a step down from an ICU room).   The room is beautiful and quiet.   The picture is taken from the couch, and I'm looking forward to being able to get a good nights rest.   However, the best thing about the couch is that for the first time in week's we've been able to sit side by side.  It's a blessing to be able to be so close to each other once again.  As I was driving back here and pondering the unexpected changes this week I realized that Huntsman is the place you never want to be, but are grateful to have arrived.

    It's been a very long week (month, and year) and much like my battery, we are both pretty drained.  Tomorrow should hopefully be a simple day with not much planned and we can recharge our batteries.   I tried searching online for a place where you can send a message to his room, but didn't have any luck tonight.  I'm planning to return home at least a few times so if you would like to send a card our address is:

10961 Sunup Way

South Jordan, UT  84009

    With this new diagnosis, many people have wished they could help.   Before finding out about his most recent diagnosis, I was looking for a comfortable recliner to surprise Chris with when he got home.   We both have been sleeping on the couch since last year when his problems with Tracheal Stenosis started and a recliner would help him to better get comfortable and get a good nights rest.  The ones that I thought would work were more than I felt comfortable spending.  Since things got more complicated this is the first thing I thought of that could help  make things easier.  If anyone is willing to contribute to helping us get a recliner we would be so very grateful.  Anything extra we can put towards his medical bills.   If you would be willing to contribute and use Venmo, our account is: @MACAWesome

      Depending on how things go with dialysis, we may also need help with getting him to and from dialysis when he returns home, or people to sit with him while I'm at work until we know more how he will react to everything.     If you would be willing to help with either of these please let us know, e-mail us at Carlsson.Home@gmail.com.