Yesterday was the first day chemo and dialysis were able to be scheduled on the same day. It made for a long day. Because of his chemo, he is in isolation at dialysis. The room yesterday was blazing hot and made dialysis more draining than normal on both of us. Hopefully it will be fixed tomorrow.
Chemo started out pretty normal, with a Velcade shot in his stomach and an IV drip of cyclophosphamide. As he was almost done with the IV his nurse noticed that his shirt was wet, and upon further investigation it was decided that the Velcade shot was leaking back out. The nurses estimated, it was likely all of the shot. They contacted the pharmacy and his doctor and Dr Sborov made the decision not to re-dose since they couldn't accurately know what leaked. However, they had to treat the leak as a "chemo" spill. They all were gowned up and everything they cleaned with was put in biohazard bags, they took his shirt and bagged it up and gave us instructions of how to wash it at home and sent him home in gown.
We thought we would be hearing from Dr Sborov yesterday the results of the bone marrow biopsy from Halloween, but he did not come visit. His nurse stopped by during chemo we were able to ask her for more info. Chemo is divided in 4 week "cycles". This was week 3 of his 1st cycle. After each cycle they will do blood tests, and we'll meet with Dr Sborov to determine the next step. She however is already working on scheduling things for his second cycle which will start right after this one. She also let us know that they scheduled the Myeloma MRI, a full body scan to check for masses and check his bones for lesions. They are also going do another type of MRI of his brain to see if they can get more information about the problem with his eye and check on his brain tumor. Both are scheduled for November 29th. He'll need immediate dialysis after the MRI to remove any contrast and then will do chemo.
Not hearing the results when we thought we would was discouraging, but we know they will come eventually. The results are a two edged sword. Knowing the specific type of multiple myeloma, the treatment plan and the prognosis will help us know and make plans. Not knowing however allows us time to just adjust. The rest of our life changed drastically last month and I think we both are still trying to process all that that means.
Today while I went to work, Chris was busy with health care visitors. He met with an occupational, physical, and respiratory therapist as well as his home nurse.
We LOVE you, both you are in our prayers. HOPE YOU FIND SOME PEACE.
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