Started this morning with an early drive to dialysis. After a bit of a rocky start with where he was going to end up, he finally got started. During his dialysis, Dr Sborov came down and visited with us for quote some time. The lab results still haven't come back yet but he explained better the ones from yesterday. They don't 100% confirm it, but it bumped their confidence fro
m 90% to 98% and he is confident they are doing the right thing. We asked a lot of questions and passed along things we thought might be helpful and worked hard to all get on the same page. They are still trying to work out the kinks, which primarily are dialysis. A new kidney doctor that was working today, Dr Bjordhal was able to offer some assistance. He manages the clinic in West Valley and was trying to get him on out there, but due to staffing issues they don't have room. However, hopefully they think they might be closer to settling him on the outpatient center at the main UofU starting on Monday.
After getting Chris situated, I went and grabbed breakfast. When I came back there was a sweet dialysis nurse named Anissa who was talking with Chris. She was encouraging him and giving him advice. Her husband had been diagnosed with kidney failure 18 years ago and she though she was going to lose him. She had handed him the token to the right, a great reminder that relaxing can help him to heal. When I came to join the conversation she reminded me to take care of myself, which I am trying very hard to do. She also gave me a great hug. She talked about how we can either "Go through things, or grow through things". Some days are harder than others, but we both try each day to look for the good and learn from this experience. It's hard sometimes to think of what we are supposed to be learning or strengthening besides patience, but came across the quote below that was what I needed to hear. Building endurance for the long road ahead is part of the reasons we've been through so much before this diagnosis.
After dialysis, we thought we would be taking his chemo today at home in pill form. However, insurance will only pay for it if it is an IV drug, which I'm sure has to be done by a nur
se at an infusion center. We could have paid an arm and a leg for the pills, but chose to instead stay at Huntsman for a few more hours and get the IV. Took a while to get it up from the pharmacy and get it started. The delay worked out and his brother Fred to arrive for another visit. He's been trying to get here since his last visit, and it will be a great boost to Chris's spirit to have him here, and huge help to me as well. We also think that he'll be OK without dialysis until Monday, so three days without any procedures planned will be a great opportunity for him to work on relaxing.
While Chris was trying to relax during dialysis I happened to catch this picture. It was too perfect not to share as I feel it perfectly fits. So much going on, so many battle scars but taking a moment for some silent contemplation.
Thanks SO MUCH for posting.
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