

For us and cancer life...Cycle 28 of DRd starts this week with testing and labs today and chemo on Wednesday. Wednesday also happens to be my birthday. When I was doing this calendar earlier this year and realized that chemo would fall on my birthday I was a bit bummed, it isn't the ideal thing to do any day let alone for a birthday. We've spent important days in the hospital before, so I quickly dismissed it. However this one is a bit more than just a birthday. When Chris was first was diagnosed, they estimated that he could have 3-5 years. My mind quickly did the math and figured I could be a widow by the time I turned 40, this birthday. I've never been one to stress over a birthday, but 40 suddenly was a terrifying number. I'm so very grateful that his chemo is working and hope and pray that it continues to do so. Chris is worried about trying to find a gift, but the time we get to spend together is the gift I love the most. I've been home a bit more these past months and it's been humbling to see how much pain he's in, and how hard he fights to be here. Money is tight and all traditional birthday celebrations are off the table. Knowing this week is filled with medical appointments (including 8 MRI's), we celebrated this weekend. Yesterday he spoiled me with his gourmet french toast and a relaxing foot rub.
Because of the virus, current hospital regulations won't allow visitors. We understand the logic behind it, but it causes a lot of anxiety, sadness and stress for both the patient and the caregiver. As I dropped him off for his last chemo, I wished for nothing more than to be exactly there, sitting beside him in the hospital at chemo. Leading up to it he was worried. We talked frequently about how and what we could do to make the day better. I however knew that the nurses would take care of him and that things would be fine. However the tables were turned that day. As I dropped him off at the entrance, the security and precautions had changed drastically from the previous time and I felt like I was sending him into danger... alone. Someone near him as he walked in said they thought they had Covid, and then a very memorable patient next to him near the end of infusion made for an extra anxious chemo session (perhaps he'll blog about that one sometime). I walked back to the car and drove away in tears, overcome with what I knew were irrational feelings. We would only be apart for a short time, and I'd be able to pick him up later that day. I tried to avoid thinking how impossibly hard it would be to drop him off for an inpatient stay of any kind. I also thought ahead to this week and what I could do to distract myself in the event I wouldn't be able to be with him again. I hoped the visitor policy would change by now, but sadly it hasn't. Since going to lunch or other things with friends or family is better avoided, I'm thinking I'll find someplace pretty and go for a walk or perhaps drive around singing some songs.

As things in the state have decreased in risk level, for us they remain elevated and will be likely for quite some time very potentially into next year. We will avoid going out as much as possible and limit those who visit, asking those that do to take extra precautions. As much as we would love to hug those who help us, we will do our best to refrain. We are so grateful for those who have helped us to stay safe and fed by bringing groceries. For those who aren't in the high risk category, I encourage you to not forget those of us who are not only trying to survive a pandemic but also fighting other battles that put us at even greater risk. Being asked to wear a mask may not be convenient and it's not a guarantee, but it does reduce the risk. Many people you may be interacting with as you go back to shopping are themselves at risk or have someone they care about that is at risk. It's a small act of humanity that you can gracefully give.